Sunday, June 16, 2013

New Treatments for MY Adhesions

I also just have to quickly address a message I received. I realize that I have not been here for awhile..I apologize. I have been very sick and fighting to win a disability case, which I did win by the way. The message I received asked about any new treatments that I had found for my adhesions. I wish that I had good news for you and that I could say that I have tried something that works. I have not. :(

I have tried epidurals that are injected in your lower spine, but unfortunately, they did not work for me. I was recently told about another procedure where I would receive injections in my back that go through to the front???? I really don't want to be stuck with one more needle!! I was just in the hospital for 8 days and had like 7 I.V's. :/ I'm done with needles!

As I said before, I wish I had good news..unfortunately, no. Anyone else???

Please read my last is extremely important to me!
Thank you for reading and for your support everyone!

Monday, February 27, 2012

How Do You Get Rid of Adhesion Pain?

That's the big do you get rid of adhesion pain? I haven't posted in awhile, but there was a reason. I really wanted to see if any of the procedures that are used to help those of us with adhesions would work for me. I have some good news and some bad news.

There are some procedures that are used to deal with the pain caused by adhesions. One of these procedures is called "myofascial release", which is somewhat of a massage used for several different problems associated with the body's connective tissue. I went to a Physical Therapist last summer to try this approach. In the beginning, I thought it may be working. Unfortunately, it was a glimmer of hope that did not pan out for me. I actually left there after several months of treatment in worse condition than what I went in. This was not because of the "myofascial release", it was because there was another procedure that was tried on me due to the herniated disc in my back. I actually left there, with another herniated disc. For this reason, and because the "myofascial release" did not work for me, I decided to end my treatment.

Don't let that completely discourage you, though. It has been known to work wonders for some folks. I was just one of the unlucky few that it did not work wonders for. It is definitely worth exploring if you are dealing with the pain associated with adhesions. Just make sure you speak to your doctor to see if it could be right for you. Also make sure that your Physical Therapist is highly recommended. :)

There are a couple of other treatments that have been recommended to me recently. I am doing some research on these treatments and will be back as soon as possible to update you on them..and me! Thank you for reading. My intention is to help others, like me, who suffer with chronic pain associated with adhesions, or scar tissue. 

To the right of this article is a donation button. I am asking for donations for two reasons. One is to help support IAS, the International Adhesion Society. This website is owned by Synechion Inc., whose president is Dr. David Wiseman. I have personally spoken to Dr. Wiseman and he is completely dedicated to finding help for adhesion sufferers. You may make donations to them directly, or please specify that you would like your donation to go to the IAS.

The other reason I am asking for donations is because I was recently denied Social Security Disability for this condition. I was told that I could "retain the ability to perform" my past work. Ridiculous. I was also told by someone that works in their office, that because I had held a job down for most of my adult life (except in times of surgeries or illnesses), that it would be difficult to get assistance. Yes, that's's more difficult to get assistance if you have been a responsible, member of society. I was told that if there were two people filing for Disability and one of them had never really held a job down to begin with, that person would be more likely to receive Disability. I was shocked and am currently appealing this decision. However, at this point, my husband is working 2 jobs to try and make ends meet and it is just not happening. We really needed Disability to come through. We have 4 children that we love dearly, but we are drowning in bills. (Medical bills, utility bills, bills, bills, bills..)

However you decide to donate, I greatly appreciate your support. Please make sure you specify where you would like your donation to go. Thank you so much, in advance.

Saturday, March 26, 2011

What are Adhesions?

Adhesions are "fibrous bands that form between tissues and organs, often as a result of injury during surgery" as defined by Wikipedia. They are basically the same as scar tissue. The difference is that scar tissue does not attach to things that it shouldn't.  Adhesions can basically take over your entire abdomen, causing extreme pain. They do this by growing and attaching themselves to organs and the abdominal wall.

 I was diagnosed with adhesions after having a partial hysterectomy a few years prior. I had survived cervical cancer and thought I was out of the woods. I was growing adhesions like crazy, but I thought the pain was coming from a large cyst that had developed on my ovary. Not that the cyst wasn't painful, but I was dealing with the beginning of a whole new existence. They went in to remove the cyst and found that all of my abdominal organs had been taken over by adhesions. I had never even heard of adhesions. 

My doctor said that everything was fused together and he had to bring in a general surgeon to remove the adhesions before getting to the cyst. He cleaned everything out, including both ovaries and I was back on the highway to good health. Well...also the highway to menopause, but that's another blog!

There was a small amount of fallopian tube cells left inside me and guess what? I grew another cyst within just a couple of weeks. I went to a general surgeon who saved the day. He went in to remove the second cyst and found that adhesions had taken already taken over my colon from just four months prior. They had also taken over my appendix, so he went ahead and took that too! He inserted an adhesion barrier. It was a film to help block the adhesions from being able to grow and attach to anything.

I went home feeling "cured". I thought surely this was it, I wouldn't be in anymore pain. The surgeon told me he did not expect to ever see me again. He had done a thorough job and everything will be fine.

It's not fine. I now live with abdominal adhesions everyday. The barrier did not work for me. I am a super grower! You see, it's a vicious causes adhesions, and the only way to completely get rid of To make matters worse, I have encountered the harsh reality that some doctor's don't even believe that the real pain I am experiencing is real. I actually had one doctor tell me, "I'm not giving you pain pills, so just stop trying". Was I really being treated like a drug addict off of the street? I left there devastated, crying my eyes out. I did not return to that doctor, unfortunately it seems there are more of these doctors than the ones that understand and treat adhesions. 

That was the day I knew I needed to make sure no one was ever treated like this. It was the day I knew that I had found my purpose. I am now unable to even get up long enough to do my own chores. I am unable to keep myself fit..even unable to be a "wife" to my supportive and loving husband. I am unable to work except for the few things I can do at home (sitting on my laptop all day).  My job has kept me on the payroll for the hours I can log in to my work computer from home. Unfortunately, this may not last very much longer and it does not pay the mounting medical bills that have grown so much that they now have their own table. I know that there are many people just like me. Please help me bring awareness and understanding about adhesions and the pain they cause. Please help me so I can help others.

If you are able to donate, thank you from the bottom of my heart and soul. I am happy to list your donation and even link to your site to let others know of your good deed. If you are unable to donate, trust me, I understand. Just please help me by passing this on...either way, thank you!